Literature Review: Down Syndrome Center (Coursework Sample)

Literature Review Down Syndrome Center Name Institution Professor Date Table of Contents TOC \o "1-3" \h \z \u 1. Introduction PAGEREF _Toc160892183 \h 32. Case Studies PAGEREF _Toc160892184 \h 3Case Study 1: Down Syndrome Center, San Diego, CA PAGEREF _Toc160892185 \h 3Case Study 2: Down Syndrome Center of western Pennsylvania, UPMC Children’s Hospital of Pittsburgh PAGEREF _Toc160892186 \h 33. How Down Syndrome Centers Are Integrated or Blended Within the Community Worldwide PAGEREF _Toc160892187 \h 34. Why Qatar Needs Down Syndrome Center PAGEREF _Toc160892188 \h 45. How the Younger and Older People of Down Syndrome Can Be Integrated in One Center PAGEREF _Toc160892189 \h 46. Linking Down Syndrome Center to Al Shaflah Center PAGEREF _Toc160892190 \h 5References PAGEREF _Toc160892191 \h 6 1. Introduction Down syndrome is a common chromosomal abnormality that occurs worldwide. Children born with Down syndrome often experience delayed physical, intellectual, language, and communication development ADDIN ZOTERO_ITEM CSL_CITATION {"citationID":"k5SycmgU","properties":{"formattedCitation":"(Quinn et al., 2020)","plainCitation":"(Quinn et al., 2020)","noteIndex":0},"citationItems":[{"id":209,"uris":["http://zotero.org/users/local/r6h8rKwY/items/59GGJARU"],"itemData":{"id":209,"type":"article-journal","abstract":"Purpose This study evaluated the effect of aided augmentative and alternative communication modeling (AAC-MOD) on the communication skills of children with Down syndrome (DS) during small group dialogic reading. Method Four children with DS between 3;1 and 5;3 (years;months; M = 4;5) and 5 typically developing peers between 3;5 and 5;9 (M = 4;3) participated. Effects were examined using a multiple probe across behaviors design with 4 children with DS. To simulate typical dialogic reading routines in inclusive classrooms, a strategy called Read, Ask, Answer, Prompt (Binger, Kent-Walsh, Ewing, & Taylor, 2010) was applied during the baseline and intervention sessions. Results A functional relation was demonstrated between (a) AAC-MOD and percentage of correctly identified symbols for 3 participants, (b) AAC-MOD and rate of symbolic communication for 2 participants, and (c) AAC-MOD and number of different words for 2 participants. Increases in number of multiple word combinations occurred for 2 participants. All 4 children maintained their percentage of correctly identified symbols. Increases in rate of symbolic communication did not generalize to thematic play contexts, a distal measure of response generalization. Conclusion AAC-MOD is an effective strategy for teaching target vocabulary and increasing rate of symbolic communication in young children with DS. Supplemental Material https://doi.org/10.23641/asha.10093538.","container-title":"American Journal of Speech-Language Pathology","DOI":"10.1044/2019_AJSLP-19-0017","ISSN":"1558-9110","issue":"1","journalAbbreviation":"Am J Speech Lang Pathol","language":"eng","note":"PMID: 31697898\nPMCID: PMC8645247","page":"80-100","source":"PubMed","title":"Teaching Preschoolers With Down Syndrome Using Augmentative and Alternative Communication Modeling During Small Group Dialogic Reading","volume":"29","author":[{"family":"Quinn","given":"Emily D."},{"family":"Kaiser","given":"Ann P."},{"family":"Ledford","given":"Jennifer R."}],"issued":{"date-parts":[["2020",2,7]]}}}],"schema":"https://github.com/citation-style-language/schema/raw/master/csl-citation.json"} (Quinn et al., 2020). As a result, they need specialized care to help them live normally and reach their full potential. Down syndrome centers are specialized facilities that are designed to meet the needs of people living with Down syndrome and help improve the quality of their lives. 2. Case Studies Case Study 1: Down Syndrome Center, San Diego, CA The facility is located in Rady Children’s Hospital, San Diego, California State. It was established in 2008 through a partnership between the hospital and a local non-profit organization to address various needs of children born with Down syndrome. Specifically, the center provides the resources, including medical professionals, needed to deliver healthcare services and support to children with Down syndrome. Another important role played by the center is to strengthen the social network of families that live with children with Down syndrome ADDIN ZOTERO_ITEM CSL_CITATION {"citationID":"4Z4nFkOj","properties":{"formattedCitation":"(Rady Children\\uc0\\u8217{}s Hospital-San Diego, 2024)","plainCitation":"(Rady Children’s Hospital-San Diego, 2024)","noteIndex":0},"citationItems":[{"id":207,"uris":["http://zotero.org/users/local/r6h8rKwY/items/BYL5SLFD"],"itemData":{"id":207,"type":"webpage","title":"Down Syndrome Center | Rady Children's Hospital","URL":"https://www.rchsd.org/programs-services/down-syndrome-center/","author":[{"family":"Rady Children's Hospital-San Diego","given":""}],"accessed":{"date-parts":[["2024",3,9]]},"issued":{"date-parts":[["2024"]]}}}],"schema":"https://github.com/citation-style-language/schema/raw/master/csl-citation.json"} (Rady Children’s Hospital-San Diego, 2024). This ensure that the children interact with other members of the community and society at large, without feeling secluded. https://www.rchsd.org/locations/main-campus/7910-7920-7930-frost-st/ Case Study 2: Down Syndrome Center of Western Pennsylvania, UPMC Children’s Hospital of Pittsburgh This Down syndrome center was established in 1989 by a group of parents with children born with Down syndrome to provide access to expert care. The organization is now called the Down Syndrome Association of Pittsburgh and continues to work closely with the Down Syndrome Center of Western Pennsylvania. The center provides information and educational support for families with children born with Down syndrome. In addition, the staff provides specialty healthcare and follow-up, consultancy in child development and behavior, locates support resources and community services for families, and works closely with families to develop child transition plans ADDIN ZOTERO_ITEM CSL_CITATION {"citationID":"leX8dZbi","properties":{"formattedCitation":"(UPMC Children\\uc0\\u8217{}s Hospital of Pittsburgh, 2024)","plainCitation":"(UPMC Children’s Hospital of Pittsburgh, 2024)","noteIndex":0},"citationItems":[{"id":212,"uris":["http://zotero.org/users/local/r6h8rKwY/items/4UUQT5D7"],"itemData":{"id":212,"type":"webpage","abstract":"Learn more about the Down Syndrome Center of Western Pennsylvania at UPMC Children's Hospital of Pittsburgh.","container-title":"Children's Hospital of Pittsburgh","language":"en","title":"Down Syndrome Center | UPMC Children's Hospital of Pittsburgh","URL":"https://www.chp.edu/our-services/down-syndrome","author":[{"family":"UPMC Children's Hospital of Pittsburgh","given":""}],"accessed":{"date-parts":[["2024",3,9]]},"issued":{"date-parts":[["2024"]]}}}],"schema":"https://github.com/citation-style-language/schema/raw/master/csl-citation.json"} (UPMC Children’s Hospital of Pittsburgh, 2024). The center also collaborates with other Down syndrome centers for clinical research. https://www.dlaplus.com/pages/children-s-hospital-of-pittsburgh-of-upmc-and-rangos-research 3. How Down Syndrome Centers Are Integrated or Blended Within the Community Worldwide Blending Down syndrome with the community involves promoting social interactions between people with Down syndrome, their families, and the larger community to help create a feeling of belonging, acceptance, and understanding. There are many ways through which Down syndrome centers can be socially integrated within the community. One way is to educate the community about Down syndrome and challenge the negative misconceptions that exist. This can be done by advocacy specialists who link people and families with Down syndrome with community resources and services through workshops, awareness campaigns, training, and community outreach programs. Communities can provide support, resources, and services to families and caregivers of people with Down syndrome. Support generally means building an active ecosystem for people with Down syndrome and their families with the necessary health system, educational facilities, and opportunities for better quality of life ADDIN ZOTERO_ITEM CSL_CITATION {"citationID":"27s2MEpt","properties":{"formattedCitation":"(Ganie & Jangam, 2022)","plainCitation":"(Ganie & Jangam, 2022)","noteIndex":0},"citationItems":[{"id":199,"uris":["http://zotero.org/users/local/r6h8rKwY/items/UMVDT7IP"],"itemData":{"id":199,"type":"article-journal","container-title":"Indian Journal of Clinical Medicine","DOI":"10.1177/26339447221111601","ISSN":"2633-9447","issue":"1-2","language":"en","note":"publisher: SAGE Publications Ltd STM","page":"49-50","source":"SAGE Journals","title":"Down Syndrome: Need for Inclusion and Social Care to Make Down Right Perfect","title-short":"Down Syndrome","URL":"https://doi.org/10.1177/26339447221111601","volume":"12","author":[{"family":"Ganie","given":"Aasim Ur Rehman"},{"family":"Jangam","given":"Kavita V."}],"accessed":{"date-parts":[["2024",3,9]]},"issued":{"date-parts":[["2022",6,1]]}}}],"schema":"https://github.com/citation-style-language/schema/raw/master/csl-citation.json"} (Ganie & Jangam, 2022). Support can also be in the form of support groups, access to information, and counseling services. Community organizations and educational institutions can also promote social integration of Down syndrome centers within the communities through inclusive policies and practices. These may include providing accessible and inclusive education programs and facilities, fostering positive self-esteem, developing social skills, fostering creative talents, rich learning environments, and promoting inclusion and diversity ADDIN ZOTERO_ITEM CSL_CITATION {"citationID":"IsJAIgja","properties":{"formattedCitation":"(Hughes, 2006)","plai...